Arthritis and COVID-19 - your questions answered
Updated: July 2021
As the COVID-19 situation is changing and UK governments are revising lockdown measures, we’ve answered your most common questions to bring together the latest official advice and guidance.
Vaccines for COVID-19 - your questions answered
Find out the most up-to-date answers to your questions on the COVID-19 vaccines and arthritis treatments.
I take methotrexate/DMARDs/other drugs that suppress my immune system. Should I stop taking it?
By stopping your medication, you're more likely to have a flare, which could make you more likely to pick up an infection.
If you have concerns about your medication, speak to a member of your healthcare team.
COVID-19 advice for people taking steroids
Are there any arthritis treatments that might help treat people with COVID-19?
The biological therapies tocilizumab and sarilumab have shown positive results in the government funded REMAP-CAP clinical trial. People who are in intensive care with COVID-19 may now receive tocilizumab or sarilumab as part of their treatment.
The REMAP-CAP trial results showed that when used as part of treatment in intensive care, tocilizumab and sarilumab reduced the relative risk of death.
Most of the data from the trial comes from patients who were also taking a corticosteroid, such as dexamethasone - which was approved in June 2020 to treat those who are severely ill with COVID-19. Research into dexamethasone was done as part of the RECOVERY trial by Oxford University, to test a wide range of potential drugs to treat COVID-19. Read more about dexamethasone.
Hydroxychloroquine, a DMARD used to treat rheumatoid arthritis, juvenile idiopathic arthritis and lupus, was also part of the RECOVERY trial. But results showed that hydroxychloroquine did not improve the symptoms of people who were admitted to hospital with COVID-19.
Vitamin D - there's been a lot of discussion about whether taking vitamin D can help reduce the risk from COVID-19. While some would argue there have been some positive findings from recent studies, there’s no conclusive evidence and research is ongoing. Find out more about the other benefits vitamin D has for arthritis.
Where can I go for benefits and employment advice?
For more information:
- Check what benefits you can get You can select England, Wales, Scotland and Northern Ireland to find out the details for where you live.
- What to do if you're already getting benefits
- Universal Credit advice
- Mobility schemes and the coronavirus FAQs. These include new and existing applications and vehicle handovers.
Read more about your employment rights and useful resources to support you in our dedicated COVID-19 employment and work section.
Can I see my GP for an appointment?
We know many health services have been disrupted during the pandemic and your GP surgery may be busy and it might be more difficult to get appointments.
If you do need to contact your GP for help, you can:
- visit the surgery’s website, use find your GP surgery to get its website details
- use the NHS App
- call your surgery
You're likely to be offered an appointment by phone or video call where it's not essential to be seen face-to-face.
If you live in England and have a repeat prescription that you usually request at your GP surgery or pharmacy, you can order this online. In Wales you can use the MyHealth Online Service, in Scotland you all call the government helpline on 0800 111 4000 to arrange medicine deliveries and in Northern Ireland you can contact the COVID-19 Community Helpline.
Flu and pneumonia vaccinations
If you've not had your annual flu vaccine, we would recommend you do so as soon as possible. This can be arranged through your GP or pharmacist.
To prepare for future increases in coronavirus cases and reduce pressure on emergency care the NHS invited more people to have the free flu vaccine last year.
- people who have been shielding and members of their households
- all school-aged children up to year 7
- people aged over 50
- pregnant women
- people considered to be at risk because of pre-existing conditions, including children under 2.
Read more about the flu vaccine on the NHS website.
If you haven't been contacted by the NHS about the flu vaccine and believe you should be eligible speak to your GP or pharmacist. If you are not included in the free vaccine programme but want to have the inoculation, they will be able to help you.
Speak to your healthcare team to find out if you need the pneumonia vaccine.
Should I take ibuprofen?
There’s been some confusion as to whether or not it’s safe to take ibuprofen and other non-steroidal anti-inflammatories (NSAIDs). The advice from the NHS is:
“The Commission on Human Medicines has now confirmed there is no clear evidence that using ibuprofen to treat symptoms such as a high temperature makes coronavirus worse.
You can take paracetamol or ibuprofen to treat symptoms of coronavirus. Try paracetamol first if you can, as it has fewer side effects than ibuprofen and is the safer choice for most people.
Always follow the instructions that come with your medicine.” How to look after yourself if you have COVID-19 - NHS website.
Will my rheumatology or hospital appointments be affected?
Due to the pandemic, there have been some changes to appointments and treatments in hospitals, such as those at rheumatology departments.
Rheumatology departments have been advised to reduce the number of face-to-face appointments they have during the pandemic. This might mean that some appointments are delayed or rearranged to take place over the phone or as a video call.
If you think you have COVID-19, you should contact NHS 111 in the first instance. You can still contact your rheumatology team about any issues with your medication or your condition, and rheumatology advice lines have been advised to remain open for this reason.
Even with all these changes, some people will still need to attend the hospital in person and there are measures in place to make this as safe as possible.
You might be asked to attend appointments alone, to avoid arriving early or to get into the hospital through a certain route. You may need to have an appointment over the phone first before the rheumatology team arranges for you to come into the hospital for a face-to-face appointment.
If your blood test results have been stable for a long period of time, your rheumatology team might extend the time between them to reduce your need to travel. Discuss this with your team, as in some areas blood test services have been set up in other locations so people can still have their tests done.
If you usually go to hospital for your treatment, you should get in contact with your rheumatology team to discuss how this might be affected. In some cases medicine that is usually collected from the hospital is now being delivered to homes or collected from safe pick-up points.
What's happening with elective surgery?
Elective surgery is restarting in the UK. The British Orthopaedic Association and NHS England are working hard to ensure there’s clear guidance on getting the service up and running safely.
In order to cope with the backlog of surgeries, they are also developing a clear prioritisation list to make sure that essential surgeries are being carried out as quickly as possible.
Learn more about preparing for your surgery including what to expect before, on the day and after an operation.
I'm worried about my child who has an autoimmune condition. What's the advice for children?
The advice for children is the same as adults. The good news is that it doesn’t seem to affect children as severely. However, it's still important for children to wash their hands as they may be able to pass the virus on to adults.
Read Public Health England's guidance for parents and carers supporting children and young people's mental health and wellbeing.
We're here for you
Remember, you can get in touch at any time. Call our free helpline on 0800 5200 520, or email firstname.lastname@example.org, chat to COVA, our COVID-19 virtual assistant, 24/7, or connect with others on our online community. Follow us on Twitter, Facebook and Instagram.